Tomorrow is the big day....we hope. The doctor put in the order for Cohen's repeat swallow study for Monday morning. The swallow specialist comes back from vacation in the morning, so hopefully her first day back isn't to hectic and she can fit Cohen in. I won't be shocked if it happens Tuesday. We will just have to wait and see.
In the meantime, I have been researching and studying harder than I ever have in my life. I didn't even study this hard on organic chem in college. I am just trying to make certain we make the correct decisions when it comes time. I just never want to look back and wish I had known more, or understood more. We are going to make informed choices with no regrets.
I pray that the swallow study will be so improved the "G" tube/nissen surgery option will be thrown out the window and we don't have to worry about all this! I have been telling Cohen it's time to be a big boy and get home!
Cohen has been doing fine in the meantime, he is still on nasal cannula at 1 liter of flow and room air. We tried to wean him to .5 liters of flow, but he was not happy about it so we returned to 1. He is still hovering around 7 lbs. Some days a little above and some a bit below.
Last night, when Justin and I were getting on the elevator we heard someone call our name. When we turned around we realized it was the parents of a sweet baby girl we knew at Baptist. We were so shocked to see them there, we thought they were home by now! Their little girl, Olivia, was also born December 23rd, just a couple of hours before Cohen. They also have a 10 year old and a 20 month old just like us. Cohen and Olivia were neighbors from the first day....I guess she missed him and threw a fit to come to Vanderbilt. They are having a hard time adjusting to the change, just like we did a few short weeks ago. We are hoping they can get things worked fast and get her home.
Also, many of you have been asking about Cohen's buddy/ girlfriend at Baptist, Emma Claire. She is coming right along and growing all the time. She is really a little warrior. Her mom, Emily, has an awesome blog explaining and interpreting lots of the NICU info.....I thought some of you would want to check it out and see what a little doll Emma Claire is!
Thanks for your continued support and prayers for Cohen. We are hopeful for the test tomorrow and know that God will guide us through. Love to you all.
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. – Philippians 4:6