April 19th

Day 118-

Justin had to brave it by himself again today. He is working on his "daddy of the year" status!! I am feeling a little better now, so I am hoping the doctor will let me back in to see my baby! I have missed him so much!

Justin said he had a hard time leaving him this afternoon since he was so playful and awake-- it was hard to not just scoop him up and bring him home. The developmental specialist came today and evaluated Cohen. We haven't gotten the full report yet, but I think she thought he did pretty well, considering everything he had been through . The pulmonary doctor also came back by to discuss what Cohen's breathing treatment regimen will be for home. Surgery team came by and got one last peek at the G tube. I think most of the loose ends are tied up for us to head home.

Speaking of home.....it looks like we will be getting discharged Wednesday in the late afternoon! Justin and I have CPR class from 2-3, and then they will let us go. Remember, this all is subject to change depending on about a million things, but so far they are sticking to the plan.

I am going to "room in" with Cohen tomorrow night, so I can make sure I am 100% comfortable with the feeding pump overnight.

It is hard to believe this journey is coming to an end. It is really bittersweet. It looks like he will be discharged on day 120.  The first 70 days we spent at Baptist (85 if you count my stay), and the last 50 days at Vanderbilt. I know I am a broken record---but I just can't help but look back and have so much gratitude for all the doctors, nurses, respiratory therapists, and many others that have contributed to us being able to take home a healthy, happy little boy.  We are just beyond excited to bring him home!

I will post tomorrow and let you know if we are still on track for Wednesday afternoon. Love and blessing to all of you!