Cohen is a small amount better today. He is having a few less spells and was more stable in his breathing while we were there. The changes are so small you have to really look to see them-
We went to the hospital early this morning and stayed until they closed at 12:30. (the NICU closes from 6-8 am and pm and 12:30-1:30 am and pm) We had to come home to take care of some things this afternoon. Leaving him is still so hard. I feel torn trying to spend as much time as possible with Cohen, and balancing time with Calee and Ames. I don't want to neglect anyone. I know we will get in a more normal routine when the holidays are over, and hopefully it will get easier.
It has been nice to spend the evening with Justin, Calee and Ames. My prayer today is that we will have our complete family home soon. I know it will take time--but I am already dreaming about it!
Happy New Year to you all.
Dear Christin,
ReplyDeleteSeeing the picture of Cohen and reading your posts bring back such a flood of emotions and memories for me. A little over 21 years ago we were right where you are today with Olivia. Not sure if you know her story or not and I won't bore you with the details, but she is a premmie, too. She was 8 weeks early and had a heart defect. She underwent 2 surgeries over a 1 year period and numerous other procedures. She is living proof of the awesome grace and power of God. I understand all the emotions, I went through them, too. Cling to your faith, and continue to journal about everything. NOTHING is trivial or small when it comes to your child. The first time I held/fed Olivia she was over 2 months old and I cried like a baby. I kept a journal of my feelings, her accomplishments, set backs, etc. and now I can look back and see how far we have come. My prayer for you all is comfort in our Lord and that little Cohen will be home soon. It is a very emotional and exausting time. If there is ANYTHING any of you need, please let us know. The hardest thing for me was like you said in your blog.... leaving them at the hospital. But remember you must take care of yourself and get rest, too so you can be healed and ready when he comes home. Our prayers are with you.
With love Melissa Griffy