We got through the first day! This really is something to celebrate. We went to lots of appointments and still had time to let Cohen swim this evening.
The appointments were good and very on time and organized. Alot of consults and pre-registering for tests tomorrow and Wednesday. He will have a Chest CT and Spinal MRI at 7 am. Then we meet with the Aerodigestive group in the afternoon.
We saw Genetics, Orthopaedics, Anesthesia, Speech Pathology and had a swallow study today. Poor Coco was worn out. So are LuLu and I. We have to be back at 6, so we are going to bed early.
It was a good news/not so good news day as always. His swallow study was much improved so I am THRILLED about that. Genetics results will take a while, but were promising. The ortho doctor gave us a completely different view than our other doctor. Still sorting that one out a little. We will get most results before we leave Friday.
I will try to update as much as I can this week. We will spend Wednesday and Thursday nights in the hospital so I am not looking forward to that. Thanks to everyone for the prayers and words of support. Love to you all!
Monday, January 30, 2012
Wednesday, January 25, 2012
My Beautiful daughter and I
"The most precious gift From Heaven above Is the gift of a daughter For a mother to love."
Cocoa for CoCo! Happy 2nd Birthday!
Has it already been a month since Christmas?????? Time just keeps flying by! We celebrated Cohen's 2nd birthday on his actual day, December 23rd.
Our theme this year was "Cocoa for CoCo", my mom has always called him "baby CoCo" and it has stuck. Now we have dropped the "baby" but kept the CoCo. My daughter Calee had the idea to have a hot chocolate bar and cocoa theme. It turned out cute. Thanks to all our family and friends that were in attendance. After everyone left I just sat in awe of all the loving and wonderful people in our lives. We are so lucky.
Here are a few pics from that morning! Thanks to my friend Lacey for taking all the pics so I didnt have to!!!
Our theme this year was "Cocoa for CoCo", my mom has always called him "baby CoCo" and it has stuck. Now we have dropped the "baby" but kept the CoCo. My daughter Calee had the idea to have a hot chocolate bar and cocoa theme. It turned out cute. Thanks to all our family and friends that were in attendance. After everyone left I just sat in awe of all the loving and wonderful people in our lives. We are so lucky.
Here are a few pics from that morning! Thanks to my friend Lacey for taking all the pics so I didnt have to!!!
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| Cohen rode around to see everyone |
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| Emily and EC with Cohen and I |
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| Hello! |
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| Trying to get a pic of the NICU Bffs |
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| Sara and Julie |
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| Calee with AG |
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| Always my helpers, Calee and Bailee |
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| Max w his Dad Scott |
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| AG and Sam |
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| Nanny and Mema |
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| Daddy and Coco with Digger |
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| Phyl Ferg, Lanae, Samantha |
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| Ames and Grace |
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| Add caption |
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| Em, Stacy and me! |
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| Jenny and Ahmmmy |
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| Bruce, Sara, and Scott |
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| Cohen and his BFF Drake |
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| Bruce and Sara |
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| FOOD! |
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| Hot Cocoa bar |
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| CoCo Cake |
What's going on with us!
Hi All! I have been hoping to find time to catch up and give you all our new information on Cohen, and the rest of us! We ended up cancelling Cohen's swallow study in early January. He was just so sick and would not have done well.
SO, basically our goal has been to keep him "well" and healthy until out Jan.30 trip to Cincinnati Children's Hospital. We have just less than a week until we leave. We will spend 6 days there. As of today, Cohen is pretty well, still battling a cough and runny nose, but nothing too bad. Calee and Ames, on the other hand, are so sick. My poor older babies rarely even get a cold, and they have both been knocked down all week with flu like virus. Calee's lungs showed a small pneumonia, and Ames has double ear infections, just to top it off! They are so pitiful! Hopefully we are on the uphill swing now.
We are keeping Cohen on "house arrest" until we leave. Just to try and get him in the best shape possible. I am so excited and also a nervous wreck about all the testing and him being put under anesthesia. But I know we will get through this and hopefully get more information on how to help Cohen's day to day life. That is our goal!
Usually, Calee and Ames are running circles around Cohen, and he is wanting to be held of just sit and watch, when he's not feeling well. This week, Calee and Ames have held down the couch, and Cohen has just terrorized them! he carries them toys and books and demands "read Calee" or "play Bubba" to Ames. Its been so funny.
I will do a detailed update when we return and hopefully a few posts in between. I will "tweet" while were there, so if your interested and want to follow me on twitter my name is davisbryant
Love and blessing upon you all!
Christin
SO, basically our goal has been to keep him "well" and healthy until out Jan.30 trip to Cincinnati Children's Hospital. We have just less than a week until we leave. We will spend 6 days there. As of today, Cohen is pretty well, still battling a cough and runny nose, but nothing too bad. Calee and Ames, on the other hand, are so sick. My poor older babies rarely even get a cold, and they have both been knocked down all week with flu like virus. Calee's lungs showed a small pneumonia, and Ames has double ear infections, just to top it off! They are so pitiful! Hopefully we are on the uphill swing now.
We are keeping Cohen on "house arrest" until we leave. Just to try and get him in the best shape possible. I am so excited and also a nervous wreck about all the testing and him being put under anesthesia. But I know we will get through this and hopefully get more information on how to help Cohen's day to day life. That is our goal!
Usually, Calee and Ames are running circles around Cohen, and he is wanting to be held of just sit and watch, when he's not feeling well. This week, Calee and Ames have held down the couch, and Cohen has just terrorized them! he carries them toys and books and demands "read Calee" or "play Bubba" to Ames. Its been so funny.
I will do a detailed update when we return and hopefully a few posts in between. I will "tweet" while were there, so if your interested and want to follow me on twitter my name is davisbryant
Love and blessing upon you all!
Christin
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| CoCo LOVES talking on the phone to LuLu....... |
Wednesday, December 7, 2011
December Update
It's been so long since I have written that I don't even know where to start! Sorry about that. We are just busy living life here.
I will start with Cohen, since he's the baby and all! Hard to believe he will be 2 YEARS OLD this month. Time has really flown. He is doing great, we have had some trouble with his G tube this fall. It had been infected for over 60 days, and we were worried the surgeon would have to move it. Thankfully, its really improved in the last 2 weeks. Since then, he has had croup pretty bad. He can't sleep and coughs so much. It's a cough that hurts your heart. I feel like today he is some better. Hoping he can feel 100% better soon.
Cohen will have a swallow study at Vandy December 19th. We are already hoping and praying for improvement and some good news. We also are taking him to Cincinnati Children's Hospital in January for some 2nd opinions. This has been a long process to get approved and actually an appointment, but we hope to hear some different views and options for his swallowing and overall health care needs. I am super excited and dread this visit at the same time. They will repeat his MRI, broncoscopy, do a sleep study, and lots and lots of other poking and prodding. In the end, I think it's worth knowing we are doing everything we can for him.
Ames is now 3 1/2. He is a busy little boy and talks non-stop. He even talks in his sleep. He loves Cohen so and they really play and have fun together. Watching the bond of brothers grow stronger daily warms my heart. He is SO excited for Santa to come visit and is asking for a garbage truck. Everywhere we go people mention his red hair. He is really funny about it. In the grocery store yesterday a lady said "look at that hair." Ames told her "ya, ya, I know, it's red." I couldn't help but laugh.
Calee is doing great, she is the busiest of all of us between dance and school. Her Christmas recital was last weekend. She was beautiful and it was fun to watch her. This week she visits nursing homes 3 days with her dance group. I am thankful for her big heart and her love of her little brothers. I think she is more excited about Christmas for them than for herself!
Here is a few pictures from the dance recital and around the house. Enjoy! Hope you all have a wonderful holiday season!!!!
I will start with Cohen, since he's the baby and all! Hard to believe he will be 2 YEARS OLD this month. Time has really flown. He is doing great, we have had some trouble with his G tube this fall. It had been infected for over 60 days, and we were worried the surgeon would have to move it. Thankfully, its really improved in the last 2 weeks. Since then, he has had croup pretty bad. He can't sleep and coughs so much. It's a cough that hurts your heart. I feel like today he is some better. Hoping he can feel 100% better soon.
Cohen will have a swallow study at Vandy December 19th. We are already hoping and praying for improvement and some good news. We also are taking him to Cincinnati Children's Hospital in January for some 2nd opinions. This has been a long process to get approved and actually an appointment, but we hope to hear some different views and options for his swallowing and overall health care needs. I am super excited and dread this visit at the same time. They will repeat his MRI, broncoscopy, do a sleep study, and lots and lots of other poking and prodding. In the end, I think it's worth knowing we are doing everything we can for him.
Ames is now 3 1/2. He is a busy little boy and talks non-stop. He even talks in his sleep. He loves Cohen so and they really play and have fun together. Watching the bond of brothers grow stronger daily warms my heart. He is SO excited for Santa to come visit and is asking for a garbage truck. Everywhere we go people mention his red hair. He is really funny about it. In the grocery store yesterday a lady said "look at that hair." Ames told her "ya, ya, I know, it's red." I couldn't help but laugh.
Calee is doing great, she is the busiest of all of us between dance and school. Her Christmas recital was last weekend. She was beautiful and it was fun to watch her. This week she visits nursing homes 3 days with her dance group. I am thankful for her big heart and her love of her little brothers. I think she is more excited about Christmas for them than for herself!
Here is a few pictures from the dance recital and around the house. Enjoy! Hope you all have a wonderful holiday season!!!!
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| Calee singing and dancing! |
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| POSE! |
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| Calee in her performance group |
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| Love Cohen's face here |
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| Ames and Cal |
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| If I could only get all 3 to look! |
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| Cohen winking! |
Friday, November 4, 2011
My little Monster, Dragon and Cutesy Witch=)
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| I could not get the dragon to look! |
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| Witch w her kitty |
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| Cohen and Ames like to push the wagon instead of ride in it! |
Monday, October 10, 2011
Home from Paradise
We just got home from a little trip to Paradise! It was so beautiful and relaxing. Exactly what we needed. Hope all of you are having a wonderful fall! I will update soon!
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