We got through the first day! This really is something to celebrate. We went to lots of appointments and still had time to let Cohen swim this evening.
The appointments were good and very on time and organized. Alot of consults and pre-registering for tests tomorrow and Wednesday. He will have a Chest CT and Spinal MRI at 7 am. Then we meet with the Aerodigestive group in the afternoon.
We saw Genetics, Orthopaedics, Anesthesia, Speech Pathology and had a swallow study today. Poor Coco was worn out. So are LuLu and I. We have to be back at 6, so we are going to bed early.
It was a good news/not so good news day as always. His swallow study was much improved so I am THRILLED about that. Genetics results will take a while, but were promising. The ortho doctor gave us a completely different view than our other doctor. Still sorting that one out a little. We will get most results before we leave Friday.
I will try to update as much as I can this week. We will spend Wednesday and Thursday nights in the hospital so I am not looking forward to that. Thanks to everyone for the prayers and words of support. Love to you all!