Friday, September 24, 2010


Some of you may remember that when Cohen had his G tube surgery, they also performed a Nissen fundiplication. This is basically where they "wrap" his stomach at the top to prevent him from refluxing and vomiting.

Well.......a few days ago he started spitting up a little. It had a some milk in it, but I thought maybe it was from us dipping his pacifier in milk during the feeding. I called our nurse and she said it was unlikely that the Nissen would come undone this soon.

Unlikely. Not my favorite word.

He is now fully vomiting after feedings------causing him to aspirate and have some lung congestion. He hacks and coughs all night. He sounds so pitiful. He is, however, still smiling and happy as ever, thank goodness!

 I talked to the surgeon this morning and he scheduled an upper GI for Tuesday, to make sure it's "unwrapped". The he said we would decide from there what to do.

I obviously don't want him to have the surgery again. But, I'm not sure it's safe for him not to have it. I guess we will cross that bridge when we come to it!

If anyone has a child that had/has a nissen, I would LOVE to hear input! We are just so uncertain on what needs to happen. He is on pretty strong reflux meds, so hopefully this will aid in controlling it.

Hope everyone has a wonderful weekend. This is Calee's last weekend in GYPSY, and we will be happy to have more free time when it ends, but she has made some great friends and lifetime memories! Love to you all!


  1. Unfortunatley, all the families {7-9} I have known IRL who have had kids get the nissen...have all had to do it again, or it simply hasn't worked at all.

    This is just so sad.

    I hope you get answers quickly!!!!!!!

  2. Bless his heart! I hope he gets better soon! You all will be in my thoughts and prayers.